This podcast features a story about the desire to have kids and the fear of losing them. Australian blogger Stephanie Ernst was struck by an incredibly rare disease which affects identical twins. The podcast highlights her struggle with the disease Twin to Twin Transfusion Syndrome – TTTS – and its closely associated variant TAPS – Twin Anemia Polycythemia Sequence. It features Dr. Enrico Lopriore head of the department of Neonatology at the Leiden University Medical Centre. TAPS was discovered by the team at the Leiden hospital.
For more information on TTTS and TAPS visit the
TTTS Foundation
Or the TTTS Grief support group
TTTS Grief support group
Stephanie’s blog is
The Inbuggering Diaries
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Here in Holland
email: hereinholland@gmail.com
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Twitter: @HereHolland.
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